Hereditary Angioedema (HAE) Treatment and Management: Why Alexandra Jansen, ARNP is a Top HAE Provider

Understanding Hereditary Angioedema (HAE)

Hereditary Angioedema (HAE) is a rare genetic condition that causes recurrent episodes of severe swelling, also known as angioedema. It is caused by a genetic mutation that effects C1, a protein that is part of your complement immune system. Swelling can occur anywhere on the body, but commonly affects the face, abdomen, or arms and legs. In severe cases, some individuals can experience internal swelling of the gastrointestinal track or airway. Swelling is typically localized, or isolated to one area and will often last several days if untreated. Unlike an allergic reaction, swelling with HAE does not respond to steroids or antihistamines. Special medications that affect C1 and the complement system are needed to stop and control the swells. Common triggers for swelling include stress, certain medications (such as hormones, birth control etc.), surgery, trauma or infection. However, in some individuals, swells occur without a precipitating trigger.

HAE is considered a rare disease, affecting approximately 1 in 50,000 people. Because of its rarity and varied symptoms, patients often experience delayed diagnosis, misdiagnosis, or years of feeling unheard before receiving proper care.

Meet Alexandra: Your Advocate, Expert, and Trusted Partner for HAE Care

At Monarch Medical, we are proud to to have Alexandra Jansen, DNP, a nurse practitioner who has been nationally recognized for her excellence in the diagnosis and treatment of HAE. Over the years, Alexandra has and continues to treat HAE for individuals and families with the upmost compassion, providing interventions and education needed to return individuals to their desired lifestyle, in many cases eliminating or dramatically reducing the number of swells.

Alexandra is an award-winning nurse practitioner and Army veteran whose career reflects both service and excellence. Her dedication to patient care has been recognized at the national level, from the Bronze Star Medal for medical service in Iraq to the 2022 U.S. Hereditary Angioedema Association (HAEA) Healthcare Hero Recognition Award. These honors represent not just achievement, but unwavering advocacy for patients with complex conditions.

Expert Care That Goes Beyond the Textbook

Alexandra has cared for HAE patients from across the state, developing extensive experience in recognizing symptoms, managing acute attacks, and creating individualized treatment plans that fit real life. She sees you. She listens and will advocate relentlessly to help you reach your goals in life- whether that is safely doing in vitro fertilization, having an elective surgery or going safely on that trip you have always dreamed about. HAE doesn’t have to hold you back… and it won’t as long as you have the right provider by your side.

Patients with HAE need more than prescriptions, they need a provider who understands the condition, stays current on evolving therapies, and stands beside them when navigating work, family life, emergencies, and insurance challenges. This is where Alexandra excels.

If you or a loved one is living with Hereditary Angioedema or are having swells without a diagnosis, having the right provider can change everything. Alexandra Jansen is not only deeply knowledgeable about HAE management, she is the kind of provider who will support and empower you every step of the way.

If you have HAE, Alexandra is the provider and advocate you want on your side.

To learn more or to schedule an appointment with Alexandra at Monarch Medical, contact our clinic today. 

To schedule call 515-200-2124 or return to website homepage monarchmedclinic.com and click “schedule now” to schedule your appointment online.